Your Stories
Your Stories
MY BRAIN AND ME
My Brain and Me is a unique project to share stories and experiences of encephalitis through a series of short films. You can find all the films here and on our YouTube channel, on our “My Brain and Me” playlist.
If you are in any way affected by these stories please do get in touch with our support team on support@encephalitis.info or call +44(0)1653 699599.
Our My Brain and Me Project is proudly supported by the National Lottery Community Fund.
Kelly's story
My name is Kelly and I have had encephalitis four times and meningitis once.
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Ana's Story
Ana was a happy 10-year-old just finishing the 4th grade when she came down with flu-like symptoms
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Anais' Story
When I was 15, my brain rewired. It’s an experience that honestly changed my life and everything that has happened since has been a result of it.
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Amy's Story
In early 2017 shortly after the birth of my fifth child, I began to have some short-term memory loss.
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Zanna's Story
Zanna Beswick, who was affected by measles encephalitis, writes about living with a long virus.
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Betzabé's Story
This is the story of my sister Betzabé, who was affected by viral encephalitis in 2017 when she was 45 years old.
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A letter from your brain
A Letter From Your Brain by Stephanie St. Claire may help you understand what happens with your brain after encephalitis.
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Hannah W's story
Hannah from North Carolina was diagnosed with Anti NMDAR encephalitis in the summer of 2021. She writes about her experience in hospital and her return to university.
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Aurelio's story
Aurelia became poorly with HSV encephalitis in 2020. His daughter, AnnaMaria, shares his story.
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Pauline's story
Pauline was affected by autoimmune LGI1encephalitis in 2015 and then again in 2017.
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Lisa's story
Lisa, from Canada, shares her story of falling ill and living with LGi1 autoimmune encephalitis.
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Hannah's story
Hannah talks about her experiences with Herpes simplex virus encephalitis, rehabilitation, and the impact the illness has had on her family.
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Dawn's story
Dawn - who was affected by Herpes simplex virus encephalitis at 17 - talks about her experiences of encephalitis, her recovery, and its impact on her life.
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Clair's story
When Clair woke up in hospital after falling ill with encephalitis, she had no idea that the people by her bedside were her parents. Her dad, Mark, tells her story.
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Bev's story
Bev talks about being the full time carer for her son Richard who was affected by encephalitis in his early 20s.
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Stolen Lives
A short video about what encephalitis is and how those affected are supported by Encephalitis International.
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Becky's story
Becky became ill with encephalitis when she was 16. She shares her story and offers advice for adapting to life after encephalitis.
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Aliya's Story
Aliya was a 20-year-old college junior in Massachusetts, USA, when she was diagnosed with autoimmune encephalitis in December, 2019.
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Aisling's Story
Aisling, from Northern Ireland, became poorly with Rhombencephalitis in 2018. This is her story
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Alex's Story
Alex had just started studying music at a university in Nashville when he became poorly with Epstein-Barr viral encephalitis. This is his story.
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Ailís' Story
Composer and theatre writer Ailís Ní Ríain was five-years-old when she became ill with encephalitis
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